Global Genes™ is a leading rare disease patient advocacy organization. The Foundation’s mission is to unify the international rare disease community by providing connections and resources to ease the burdens of affected patients and their families. Recognized worldwide by the Blue Denim Genes Ribbon™, Global Genes unites experts, advocates and patients of all ages to stand together in hope for treatments and cures for the estimated 7,000 rare and diseases that impact approximately 30 million Americans and over 350 million people worldwide. For more information, visit www.globalgenes.org.

Projecis is a content management and data visualization platform that enables project stakeholders to connect teams, organize data, and disseminate information for better business decision-making. Project team members can access documents, dashboards, metrics, milestones, assignments, issues, Gantt charts, resource views and more. Team knowledge is searchable, and maintained in one place with real-time commenting for all posted content. The platform can be extended to add custom applications for more-targeted client needs. For more information, visit www.projecis.com.

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access. Visit sanfordresearch.org/CoRDS to enroll.