80% of Rare Diseases are Genetic in Origin
75% of Rare Diseases Affect Children
30% of These Children Will Not Live to See Their 5th Birthday
What We Do
Paving the Way for Treatment Development
Supporting Rare Disease Patient Organizations
Impacting Rare Lives One at a Time
Access to Diagnosis and Treatment
Collaborations
Stories
UNDIAGNOSED
A film by Katia Moritz and Nicholas Miller
Patients with Complex Craniosynostosis Syndromes
Supporting the Born a Hero Research Foundation
Highlight on Persons with Rare Disabilities in Sub-Saharan Africa
Helping Rare Disease Patients in Low-and-Middle-Income Countries
Who We Are
We at PROS spent our careers in drug development, with many years focused on clinical trials for rare diseases – interacting with rare families and patient organizations. We now volunteer our time to help rare disease patients and patient organizations. While we realize we can’t change the world, we aim to improve the quality of life for rare patients one at a time. We are passionate about helping patients with their diagnostic journey, obtaining access to treatment and developing a path to clinical trials for new treatments. We are US-based, but also support patients and groups in developing countries. It’s our heart’s passion to help organizations achieve their vision.
Ellen Morgan, MS
Founder and President
Ellen has over 25 years of drug development experience in large pharma, small biotech and CRO. She founded and led two successful Clinical Research Organizations – Synteract and Agility Clinical – most recently serving as President, Rare Diseases at Precision for Medicine. Agility was dedicated to clinical trials in rare diseases and supporting patient organizations.
Ellen received a BS in Chemistry and MS in Management and Industrial Engineering from Rensselaer Polytechnic Institute, and post graduate studies in statistics and genetics.
Olivia Montano-Tritz
Senior Director
Olivia Montaño-Tritz has been in the clinical trials industry for over 20 years assisting rare disease focused biotech/pharma with data management and patient engagement services as well as assisting patient advocacy organizations with registry and data discussions.
Olivia’s empowerment of others has been recognized by the Association for Women in Science and PharmaVoice 100. She is an active co-author to many chapters in the Society for Clinical Data Management’s Good Clinical Data Management Practices document and is a certified Clinical Data Manager.
Yaw Asare-Aboagye
Project Advisor
Yaw is the Founder and Chief Executive Officer of Optima Clinical and has over 30 years of experience in the US pharmaceutical and biotech industry. Most recently, He was the Global Head of Clinical Operations at Drugs for Neglected Diseases, based in Nairobi, Kenya, where he spent nearly five years leading the clinical teams in conducting clinical trials for neglected tropical diseases.
Yaw holds a DVM degree from the University of Ibadan and an MS in Biostatistics from the Louisiana State University School of Public Health.
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